What living with the condition is like, by stage.
Patient involvement, what you may call patient engagement: the same people over time, in their own words, broken down by who said it.
What you'd use us for
- What living with the condition is like, from before diagnosis to years in, and where the unmet need is.
- Protocol and document review: protocols, consent forms, materials and products, before they're final.
- Ask our data: answers built only on what members have already told us, every one linked to who gave it, then ask members live.
- The same people again, so findings can be compared over time.
"What does a bad week with psoriasis look like, and is it different for people in the most deprived areas?"
What comes back
An answer straight away from what members with psoriasis have already told us, broken down by deprivation and linked to the members who said it. Then ask members live: survey answers, voice notes and video diaries within hours or days, with the themes, how many raised each one and who, and de-identified quotes.
People living with the condition reshaped a clinical trial programme's recruitment strategy and consent materials.
Both were changed because of what they told us. The programme went on to enrol 560 people, 112% of target. Their input was gathered for the pilot specifically, and their work was the recruitment strategy and consent materials, not the enrolment. The sponsor can't be named.
Read the case studyAdvisory boards give you a handful of voices
Advisory boards and roundtables give you a handful of voices a few times a year. We give you people living with the condition, built to match everyone who has it, whenever you have a question, and a report showing who said what and what changed. It sits alongside your advocacy partnerships rather than replacing them.
Evidence, never brand work
Members never promote a product, act as ambassadors or mentors, or appear in a company's marketing.